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Join date: Jul 18, 2023
Posts (5)
Jun 8, 2026 ∙ 1 min
What Is Juvenile Batten (CLN3) Disease?
Thank you for taking the time to learn about Batten disease. The only chance for a cure is an army fighting for it, and that comes with awareness. Whether you found this blog through our Culvers Share Night benefitting BDSRA (Batten Disease Support, Research & Advocacy Foundation), you're a Cl3an Freak customer, or through some other route, I appreciate your time to educate yourself and hope you will spread the story further. This blog contains the scientific information: Juvenile Batten...
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Jun 18, 2025 ∙ 2 min
Soap Box
This post is not political. It comes from experiences in my real life. Tomorrow is Juneteenth. History is being rewritten, revised,...
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May 24, 2025 ∙ 5 min
2025 Batten Disease Awareness Day
THANK YOU! Thank you for being here! Thank you for being on my site and taking time out of your day to read this blog and learn more...
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