CL3AN FREAK

Thank you for taking the time to learn about Batten disease. The only chance for a cure is an army fighting for it, and that comes with awareness. Whether you found this blog through our Culvers Share Night benefitting BDSRA (Batten Disease Support, Research & Advocacy Foundation), you're a Cl3an Freak customer, or through some other route, I appreciate your time to educate yourself and hope you will spread the story further. This blog contains the scientific information: Juv

This post is not political. It comes from experiences in my real life. Tomorrow is Juneteenth. History is being rewritten, revised,...

THANK YOU! Thank you for being here! Thank you for being on my site and taking time out of your day to read this blog and learn more...

Last year I started a sort of “MVP” recognition at the annual International Batten Disease Awareness 5k in an effort to shout out and...

Long update on Daxx: Those of us that interact with Daxx daily have been seeing and feeling the changes for a while now. This school year...