This post is not political. It comes from experiences in my real life. Tomorrow is Juneteenth. History is being rewritten, revised,...

THANK YOU! Thank you for being here! Thank you for being on my site and taking time out of your day to read this blog and learn more...

Last year I started a sort of “MVP” recognition at the annual International Batten Disease Awareness 5k in an effort to shout out and...

Long update on Daxx: Those of us that interact with Daxx daily have been seeing and feeling the changes for a while now. This school year...