THANK YOU! Thank you for being here! Thank you for being on my site and taking time out of your day to read this blog and learn more...

Last year I started a sort of “MVP” recognition at the annual International Batten Disease Awareness 5k in an effort to shout out and...

Long update on Daxx: Those of us that interact with Daxx daily have been seeing and feeling the changes for a while now. This school year...