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5 years already?!?

We had only moved to Florida a few months prior, as soon as Daxx was diagnosed, so we hardly knew anyone.

I remember standing in that dirt lot with a couple family members and even fewer staff from his school. The event has almost doubled every year since and we’re over 100 people now!

Last year we turned our 5K into a blindness experience with stations like braille, walking blindfolded with a cane, and playing goal ball. So fun and informative! We will be repeating the experience aspect again this year, but it's going to be EVEN BETTER!

This year’s theme was designed to be personal to Daxx. He loves Legos so much and spends almost every free moment building. He wants to be a Lego Master Builder when he grows up. When you support our cause, YOU are a Master Builder, helping us build a future with a treatment or cure for this disease that currently has neither. Thank you!!

We hope to see you there! Be sure to grab yourself an event shirt while you're here!

 

When: May 24th @ 9:00 am

Where: Wildlight community, Yulee, FL (exact address coming soon)

 

 *Use code REGISTRATION at checkout to bypass the shipping fee ONLY if there is nothing else in your cart

5th Annual Batten Disease Awareness Day Experience

$25.00Price
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